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ICW Global In Action

July 2017

ICW Global Updates


Make research work for women and girls living with HIV

The International Community of Women Living with HIV (ICW) calls on researchers and stakeholders to make deliberate efforts for equitable recruitment and participation in research that support meaningful engagement of women and girls particularly women living with HIV.

Historically, women have been underrepresented in HIV and AIDS Prevention research, and especially women and girls living with HIV. This lack of involvement is partially a result of non-existent or ineffective recruitment strategies and inadequate financing to involve women in programmatic design and decision-making processes at all levels of the research process.

Ensuring women, including women living with HIV, participate in all levels of research development and implementation can help researchers recognize and overcome barriers such as sensitivities around HIV disclosure and stigma, and practical barriers such as child care and transport needs, as well as ensuring that technical jargon is accessible to all research participants.

We urge researchers and other stakeholders in the scientific community to make deliberate efforts to support the engagement of women and particularly, women living with HIV in research. Supporting women living with HIV networks to undertake operational research will be instrumental in giving much needed evidence for review and implementing interventions that work to address the prevention and treatment needs of women and girls.

Our participation will ensure accountability mechanisms are in place for monitoring implementation of good participatory practice (GPP) and other ethical advisory mechanism followed research including during clinical trials. This will increase accountability, program effectiveness and have positive outcomes on research for all women and girls, especially, women living with HIV.

Activity to Impact

ICW participates in technical HIV/GBV network meeting

Hege (UNAIDS), Teresia (ICWNA), Florence (ICW) pose for a photo at the meeting

ICW joined stakeholders to a meeting to discuss Gender Based Violence (GBV) as a barrier to women’s use of HIV behavioral and biomedical prevention and treatment services. The meeting dubbed ‘Gender Based Violence as a barrier to women’s use of HIV services; current evidence about the problem and how to address it’ was convened by Project SOAR of Population Council took place in Washington DC on May 31st to 2nd June 2017.

ICW was represented in the meeting by Teresia Njoki; ICW North America Regional Coordinator and Florence Anam ICW Advocacy and Communications Manager. Also joining to represent the perspectives of women living with HIV in this meeting was Alice Welbourn of Salamander trust.

Florence , Teresia and Alice represented Women’s perspectives of GBV as a barrier to use of HIV services in a panel session moderated by Hege Wagan of UNAIDS calling for the need to invest more in Women Living with HIV led research and asking for engagement in research to be about more than being research participants.

The meeting sought to Discuss state-of-the-art programming that addresses both GBV and HIV; Recommend priority implementation science research questions that will improve GBV and HIV outcomes among different sub-populations of women; Identify ways to raise the visibility of GBV as a critical barrier to women’s uptake of HIV services and the need for further implementation science around this issue.

ICW participates in #teamwomen meeting

ICW was thrilled to engage in the #teamwomen Mobilizing for accountability for gender equality and women empowerment to end AIDS meeting organized by in consultation with the Global Coalition of Women on AIDS in collaboration with UNAIDS, UNWOMEN, UNDP, UNFPA.

The convening provided an opportunity to review strategies that best support accountability for the commitments to gender equality and women’s empowerment. The consultation also discussed in detail how the initiative could facilitate and support such engagement, as a convener, connector and amplifier of voices of young women and girls.

The meeting which took place at on 30th June to 1st July at UNAIDS headquarters, Geneva, Switzerland was attended by Women living with HIV, civil society partners engaged in gender equality, the empowerment of women and girls, key populations, SRHR and HIV, including members of the Global Coalition of Women and AIDS (GCWA) and UN partners.

Photo courtesy of ITPC

ICW attend the Differentiated ART Delivery for Communities meeting from June 19-23rd in Bangkok, Thailand. The aim of the meeting was to strengthen the capacity of people living with HIV (PLHIV) networks on and civil society organizations (CSOs) on ART delivery to foster regional and in-country advocacy and support for community-led demand creation – and to pilot an activist’s toolkit.

The meeting was supported by IAS in partnership with ITPC and ARASA.ITPC & ARASA are developing a user-friendly advocates’ toolkit that will be used by PLHIV leaders, activists and community peer educators at country level to support demand creation for access to differentiated ART delivery.

ICW was represented in this meeting by Velvine Jobiese our focal person for women and key populations. For more information follow the link here

ICW attends good participatory practices in research convening

On 19th and 20th June 2017 the International Community of Women Living with HIV was represented by Maurine Murenga, in a forum to discuss The Good Participatory practices in research. The Good Participatory Practice (GPP) Guidelines were developed by AVAC and UNAIDS.

They provide trial funders, sponsors, and implementers with systematic guidance on how to effectively engage with all stakeholders in the design and conduct of biomedical HIV prevention trials. The guidelines are available in multiple languages. Identify successes, gaps, opportunities and emerging models for GPP implementation at local, national and regional levels; Strengthen interventions to engage high-level stakeholders – both champions and sceptics alike – in GPP implementation; Identify targeted opportunities for collaboration and synergies among attendees and the constituents and organizations they represent.

The meeting concluded that Research literacy and empowerment of communities should be part of GPP guidelines and that GPP should form a strong part of both prevention research and cure research.

Calling on members to access free Stepping stones copies from Salamander trust

The Salamander Trust recently launched the Stepping Stones with Children training package. It contains powerful participatory exercises which enable children affected by HIV aged from 5 to 14 and their caregivers to gain information, explore norms and discover their abilities to create happier, healthier and safer ways of being.

It also contains a guide to support counselors to improve their practice when working with children and their caregivers. The package was developed with PASADA in Tanzania, where community workshops resulted in, among other things, better health and management of living with HIV, improved household relationships and less violence against the children, enhanced self-determination and feeling of belonging, and better service provision and willingness to use those services.

You can find out more about Stepping Stones with Children on Salamander Trust's website. If you think it might suit your not-for-profit organization please use our on-line form to apply for FREE copies of the materials.

Dolutegravir (DTG) pre-lauch community consultation meeting

ICW joined community representatives in Kenya to a consultation meeting organized by the National Empowerment Network of People living with HIV (NEPHAK) and AfroCab in Nairobi on 27th June. The meeting was a precursor to the launch of generic DTG by the Ministry of health. The launch aims to address access to better HIV drugs by people living with HIV in the country.

The Community consultation provided ICW an opportunity to learn more about the drug and to engage with community representatives on a way forward to intensified advocacy for speeded accessibility for all while ensuring human rights gaps are addressed in implementation of HIV treatment intervention.

For more information on the launch see details here.

Jacky(NEPHAK), Florence (ICW), Dorothy (WOFAK) and Daughtie (ASWA) take a photo at the meeting


ICW mourns Prudence Mabele

Kenya to introduce better treatment for people living with HIV

ICW congratulates GNP+ on selection of new board members

HIV justice worldwide July newsletter

WHO launches drug resistance report at IAS 2017

Observance days coming up

Aug 1-7

World Breast feeding week

AUG 12

International Youth Day

Upcoming Events and Times for Global Action

  • Upcoming events and conferences
IAS Scientific Conference- 23rd to 26th July, France

REPSSI Conference 3rd to 6th September 2017, Dar-es-salam, Tanzania

AIDS Impact 13th International Conference- 13th to 15th 2017, Capetown, South Africa.

International Conference on Sexuality 2017: Health, Education and Rights, hosted by Tomorrow People Organization, taking place from 17-19 July 2017 in Bangkok, Thailand.

ICASA- 4th – 9th December 2017; Abidjan Cote d’ ivore

Upcoming meetings and deliberations for ICW engagement in March

GFAN speakers bureau meeting, 18th to 19th Aug 2017, Amsterdam, Netherlands

Stigma Index Small Working meeting 24th to 15th Aug 2017, Washington DC

Fundraising opportunity

Aidsfonds 2017 Call for Proposals: Challenging intellectual property barriers that prevent access to treatment for people living with HIV in Kenya, Mozambique, Nigeria, South Africa, Uganda, Zimbabwe, Indonesia, Myanmar, Vietnam, Bangladesh and Ukraine. Deadline 22nd Aug 2017. See link here for details 

Meet the women of ICW



Munyaburanga Uwase Nadege



Title/Position in Region

Secretary ICW Rwanda



WHO I AM: An advocate for youth rights especially the adolescents and young people living with HIV. Most of the advocacy work I do is to make sure that there is an inclusion of adolescents, young women and girls in the HIV response in Rwanda.

My passions include helping underprivileged youth, tackling health and other related issues that affect youth and changing their lives to make a positive impact. I am very passionate about issues affecting/related to adolescents and youth development and secondly being part of the movement of young people that combats these issues through collaboration and engaging in policy making and implementation of national, regional and global policies and programs related to young people.

“Young people are the manifestation of a community’s successful development stories; engaging them in the agenda would make it an entirely a national manifestation” Personal quote.

WHAT DO I DO: Advocacy for young people (including YPLHIV and women) in all their diversities. Currently, I am working for a youth-led organization for young positives called Kigali Hope Association asa Program Manager, peer educator at the Young Women’s Christian Association (YWCA-Rwanda), communications and Advocacy mentee at the International Community of Women Living with HIV (ICW-EA), Country Task Team Member for the East African National Networks of AIDS Service Organizations (EANNASO) CCM(Country coordinating Mechanism) Shadow Report Initiative, General Secretary to the African Youth and Adolescents Network(AfriYAN-Rwanda Chapter), Communications Manager for the East African Youth Alliance on Sexual Reproductive Health Rights and HIV/AIDS, member of the Communities Delegation to the Global Fund ATM Board, youth Rights advocate to the UNAIDS country and Regional office, Secretary to SPECTRA Rwanda; a Young Feminists movement, a youth Ambassador to the AIDS Healthcare Foundation country and Global office and finally but not least I am currently the focal point person for the National Parliamentarians TB Caucus hosted by the STOP TB Partnership.

WHY IS ICW IMPORTANT? : ICW is the real definition of who I am, I have seen myself grow at ICW from just being a member to taking action and being part of the CYWAG Media Team. The most important thing I love about ICW is that one feels at home because ICW is all about sisterhood, considering all women in all their diversities. This sisterhood is what keeps the movement and nurturing more young women to become health rights advocates.


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