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10 May 2016


What Women Living with HIV Want! ICW Women Living with HIV – HLM Consultation Outcome


In preparation for the upcoming High Level Meeting on Ending AIDS (HLM), to be held from June 8-10, 2016 in New York City, the International Community of Women living with HIV (ICW) conducted a process of consultation with our members around the world including meetings, reviewing regional positions, one-on-one dialogues, and an online survey of its members to understand better what women living with HIV want to see prioritized in the HLM Outcome Document and in country commitments. The consultation process was an important avenue to hear the voices and perspectives of women living with HIV from around the world.


In the weeks leading up to the High Level Meeting, ICW is working with our allies including International Council of AIDS Organizations (ICASO) and International Women’s Health Coalition (IWHC) to ensure that our voices are heard in the negotiations around developing the HLM, which will guide and monitor the HIV and AIDS response towards achieving the end of the AIDS epidemic by 2030; and towards realizing the promise of the Sustainable Development Goals. A zero draft of the was released by the UN on April 18, 2016. It will be negotiated by advocates, policymakers, and governmental officials over the coming weeks leading up to the HLM.

ICW Calls on Governments and Key Stakeholders to:

Commit to Gender Equality!

Governments must:

  • Create a gender-responsive policy that takes a human rights-based approach to the HIV response;
  • Implement programming priorities and funding that recognize gender discrimination as a barrier to a successful HIV response;
  • Recognize and invest in community engagement of women living with HIV as central to the success of the HIV response;
  • Commit to mobilize resources, especially at community level, and fully fund and support robust community participation including peer-led research.

End Discrimination and Criminalization!

Governments must:

  • Eliminate adverse laws and policies including criminalization of HIV transmission which continue to impede HIV prevention and treatment, and the criminalization of key populations like women who use drugs and sex workers; strengthen commitments already written in the Outcome Document to reject overly broad criminalization of HIV as well as to reform punitive legal policies and frameworks aimed at people living with HIV.

Prioritize Sexual Reproductive Health and Rights!

Governments must:

  • Recognize women’s autonomy over their bodies, and that gender discrimination is a barrier to ending AIDS by 2030;
  • Keep all language regarding sexual health and reproductive rights and comprehensive sexuality education currently in the Outcome Document, and add commitments to reducing violence against women, especially in conflict settings;
  • Recognize that sexual health and reproductive rights encompasses abortion on demand, clear guidelines on breastfeeding for women living with HIV, freedom from forced and coerced sterilization, rights-based PMTCT programs, as well as increased commitment and investment to ending maternal mortality; these must be reflected as priorities in the Outcome Document;
  • Recognize that women living with HIV are not only mothers, but we are also independent human beings, who are also deserving of their full human right including sexual, reproductive and health rights and access to treatment care and support.

A call to women living with HIV prior to and during the HLM:

  • Find out who will represent your country at the HLM, and reach out (write a letter to your UN mission and, if possible, join the delegation!);
  • Meet with your country delegation to share ICW’s priorities for the HLM Outcome Document;
  • Share information with one another, and become part of the ICW HLM working group.

Let us know if you are going to the HLM! Read the Zero Draft and share your thoughts with Katie Filous at




ICW women

Global Office

Yaya Center, Wood Avenue
Machera Court, Komo Lane
Ground Floor – CG

PO Box 7228 Postal Code 00100
Nairobi, Kenya

Kenyan Based Staff

Rebecca Matheson – Global Director

Velvine Jobiese – Administrative Assistant

Florence Anam – Advocacy and Communications Manager

Maurine Murenga – Global Fund Coordinator

Rose Adem – Finance Manager

Virtual Staff

Toronto, Canada

Jessica Whitbread – Community Relations & Mobilization Manager

Washington, DC, US

Sophie Brion – Human Rights Attorney

Washington, DC, US

Katie Filous – Legal Fellow

Kampala, Uganda

Margret Happy – Communications and Advocacy Officer

Regional Coordinators

ICW AP: Sita Shahi



ICW NA: Deloris Dockrey

ICW MENA: Rita Wahab

ICW C: Olive Edwards

ICW LA: Arely Cano

ICW CA: Francine Nganhale

ICW ECA: Sveta Morozo

International Steering

Asia Pacific

Norlela Mohktar, Malaysia

Marama Pala, New Zealand,

Acting Chair

Central Africa

Fetia Donatienne, Democratic Republic of Congo


Althea Cohen, Jamaica

East Africa

Teresia Njoki Otieno, Kenya

Europe and Central Asia

Olena Stryzak, Ukraine

Zhenya Mailyan

Latin America

Ruth Mery Linares Hidalgo, Costa Rica

Hilda Esquivel, Mexico

Middle East and North Africa

Souhalia Ben Said, Tunisia

North America

Deloris Dockrey, USA,


Marvelous Mucenje, Canada

Southern Africa

Thembi Mkambule

Global Chair

West Africa

Monisola Elizabeth Ajiboye, Nigeria

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