ICW Asia Pacific Regional News

ICWAP in in action

Here is the welcome remarks  statement made by Coordinator on behalf of all Community people in the region.

Good Morning Ladies and gentle Men!!

On behalf of community people and ICWAP, I would like to thank you all for giving me the opportunity to speak about the experiences and those of the many women and men who are not here today but who I will try to represent.


Today I take this opportunity to share the lived experiences from this region. I could see well combination of diverse group and experts who have been contributing many years in HIV response.



I would like to link a story Because every personnel story influence to the political issue.


I am a mother of a baby who turns 5 yrs now, I would like to recall the situation when My first Boy was so seriously ill and was tested for HIV without my consent and hospital staffs breaches the confidentiality with public and I was treated as unhuman by those society and hospital.  Eventually I left the hospital, I took my boy who was now dead to long road pretending like my Boy is sleeping in my Lap. Even I was restricted to cry because I was threatened like criminal.


Today, I confess and acknowledge those people in a positive sense because whatever I faced was because of lack of information OR capacity of health care workers and may be that was done unknowingly.


To that time to till date   We could see positive difference in health care setting but still not that much different particularly women and girls who are: Women who use drug, women Sex worker and transgender women, house wives, students or single women.


There are significant circumstantial evidences of violations of human rights in health care settings

These includes:

Denial or delaying of medical treatment including, surgery/dialysis 

denial of access to sexual and reproductive health services,

coercion and treatment without informed consent,

Judgmental based on sex /gender identity / behaviors

Breaching the confidentiality


However, there is limited documentation to support this subjective evidence. Because people afraid to complain and most of them don’t know that they can complain for the rights.


Most of people specially women and CABA brought to hospital in a critical stage with NO MONEY and No support from Family. I am highlighting here because Women, girls are the group who are overlooked during the planning, allocating resources and implementation of the programs that needs to be looked through gender lens.  These people are considered as multiple cycle of violations related to health.

There are strong evidences in the region which shows that Drug users and LGBT community are criminalized in many aspects.


Again, I can’t say exact amount of cases of cervical cancer in women living with HIV in the region but I am sure there are critical numbers coming soon from few countries where we need to be alert because there is a more chances of denial of surgery.


We are here to reinforce our commitment to strengthen our service provision collectively by sharing our learnings with Government /Duty barriers /service receiver /policymakers and supporters


As we know that a family is the first place of education for children likewise, Hospitals are same for community people because after the first impression in hospital people direct their mind where to go ---- it influences whether to Test HIV-- disclose their status or not ---- and also maintaining their treatment adherence ---it is urgent to talk because if people do not test --- do not disclose to partners --we are not going to achieve 90-90-90 at all.


Because in this region ONLY 64% know their status-41% are on treatment-34% virally suppressed.


  Urgently our action is required to eliminate discriminatory laws and policies and to adopt an enforce protective laws that ensure human rights-based HIV prevention, treatment, care, and support for people living with HIV and key populations including women and girls in all their diversity.

Formulate human right care committee in each hospital is essential.

 There are still lack of information and capacity in health care setting which needs to be strengthened.

   Address stigma and discrimination in order to create an enabling environment within the health care facility for women living with HIV to come and access health interventions.

 Resources and capacity for the networks and community led organisation to challenge and avoid stigma and Discriminations.

It is only possible If we know our rights and be able to seek them.


I am sure there are so many exciting initiatives and learning to be shared during 2 days and We are here to have a collective movement and work together to make possible ZERO discrimination.


Because ultimately our goal is in Nepali Nasarekolai saran Nadine and SAREKO lai marna Nadine ) WHICH MEAN ( PREVENT HIV who DO NOT HAVE AND MAKE THEM SURVIVE WHO HAVE IT )


Thank you very much for your kind attention!!